Newsletter Coordinator / Editor
ME/CFS Canterbury/West Coast Charitable Trust managed by Volunteering Canterbury
Are you interested in making a difference by curating information that supports and connects those effected by ME/CFS and long COVID in Canterbury and the West Coast?
Our newsletter provides information and connection for our community of people who live with debilitating illness. Most have limited wellness for searching out information.
The Newsletter Coordinator curates & writes the content and prepares the layout of our newsletter.
The newsletter is sent out by post and email every two months (Feb, Apr, Jun, Aug, Oct, Dec). Go to our Website to view past issues.
The newsletter is currently in A5 booklet format, ranges between 20 to 32 pages, and contains a variety of information including;
- Latest news
- Promotion of upcoming events
- Personal stories and experiences
- Articles on managing the illness and supports available
- Updates in ME/CFS Research
- Recipes
- Highlighting useful products and services
- Graphic items
Full support and handover is available from the current Newsletter Editor.
Do you have?
- Excellent English writing skills for public material.
- An understanding of ME/CFS, or a similar chronic disabling condition, and the impacts on quality of life.
- Able to research and summarise topics
- Warm and calm manner
- Good time management and organisational skills, and able to work without close supervision.
Please get in touch if you have a passion for writing and people. A position description is available for this role. Please apply to request a copy and to tell us why you are interested in this role.
Recent testimonies...
- “If I hadn't met with the Nurse who validated my experience of my chronic illness and advocated for me with my GP to obtain a diagnosis, I would not be here. Life had got too hard."
- "I love this organisation, so caring and respectful in everything that they do, and always looking to progress forward."
Did you know? People with ME/CFS, Myalgic Encephalomyelitis /Chronic Fatigue Syndrome and long COVID have a reduced level of functionality that means they cannot complete normal activities of daily living.
An additional burden is that doing too much physically or mentally can trigger Post-Exertional Malaise – a worsening of symptoms that can last for days or more.
Many people with ME/CFS are house or bed bound, are unable to work, and do not have access to adequate financial, home and mobility supports through the welfare and health systems.