Group Meeting Coordinator
ME/CFS Canterbury/West Coast Charitable Trust managed by Volunteering Canterbury
We are looking for someone to help us improve the wellbeing of people with ME/CFS and long COVID and their whanau by:
- Coordinating group meetings around the region.
- Hosting some of our in-person and online group meetings (optional).
- Preparing resources from presentations and group discussions for sharing with our community in our newsletter, social media, and website.
Do you have?
- A qualification relevant to the health, disability or social work sector is desirable.
- An understanding of ME/CFS, or a similar chronic disabling condition, and the impacts on quality of life.
- Warm, kind, non-judgmental, and calm manner
- Good time management and organisational skills, and able to work without close supervision.
Recent testimonies...
- “If I hadn't met with the Nurse who validated my experience of my chronic illness and advocated for me with my GP to obtain a diagnosis, I would not be here. Life had got too hard."
- "I love this organisation, so caring and respectful in everything that they do, and always looking to progress forward."
Did you know? People with ME/CFS, Myalgic Encephalomyelitis /Chronic Fatigue Syndrome and long COVID have a reduced level of functionality that means they cannot complete normal activities of daily living. An additional burden is that doing too much physically or mentally can trigger Post-Exertional Malaise – a worsening of symptoms that can last for days or more. Many people with ME/CFS are house or bed bound, are unable to work, and do not have access to adequate financial, home and mobility supports through the welfare and health systems.